Shelter from the Storm

Author:

Binding: Paperback
List Price: $15.95
Our Price: $2.00 USD
Qty Avail: 18


ISBN: 9780738205342
Publisher: Perseus Books Group
Language: English
Page Count: 220
Size: 8.54" l x 5.50" w x 0.58"
Series: N/A

Nothing is more excruciating or heartwrenching for parents than caring for a child who is critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.

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